Sweet F.A.

Alun's brother died of it at 34; so did his sister; Alun is past his 34th birthday and as he says, living on borrowed time. FA is Friedreich's Ataxia; sweet says Alun Jones , because of the diabetes he suffers along with it. Sweet FA is the title of his autobiography; but it could be his comment on government spending on research into this progressively crippling, inherited disease. Not that Alun or his family complain. They do all they can to raise money to support the research project trying to discover the faulty gene which causes this cruel disease and find a cure. But should this kind of research be made to depend on the fund-raising efforts of sufferers and their families?